child loss

capture your grief, day 21: relationships

/ Kade's mom / Leave a comment

21. RELATIONSHIPS | How have your relationships changed? Did you lose any? Have you made new friendships?

Because the death of my child colored everything, my relationships have changed.

Some are more real and authentic. A life-changing event nudges in that direction.

Some have been strained because of the fact that more truth does enter in.

Some have been shaken up a bit because I’m learning what I can and can’t expect from others for whom this is also new, and who are also figuring it out.

Over some rough spots, I thought that I was losing relationships. But then something I was told clicked: The words or actions that I perceived as hurtful were coming from a caring place. People Just. Don’t. Know.

Some relationships are more distant because I don’t have the bandwidth to reach out as much as I would like. Some of that is purely due to energy, and some, to emotional availability.

But most of my relationships can take the bumps and curves, and continue to grow and develop. Change is hard. Who wants a relationship to change? Screw that, let’s stick with what’s working. But the only constant is change, right?

I certainly have made new friends. The bonds within bereaved parent circles is unexplainable. We can let our hair down at a meeting. We can talk about our intimate stories over omelettes. We can share our narratives: the unabridged versions.

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Wash. Park, Denver, 10/19/16

capture your grief, day 20: gratitude

/ Kade's mom / 2 Comments

I’ll just say it. It’s hard to have gratitude since Kade died.

I know I have a lot to be grateful for. I know this when I look at my 6-year-old, or husband, or home, or Colorado Rocky Mountains, or feel my heart beat. It was hard to have gratitude right after Kade died, and is still hard at four years out. I’m not saying that it’s right, or that it’s not something I need to spend time on. I’m just sayin’.

Today is Brian’s and my ninth anniversary. I am grateful for my devoted and supportive husband. Here is the card I opened from him tonight: perfect for today’s theme.

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capture your grief, day 19: grief rituals

/ Kade's mom / 1 Comment

We have a few rituals to honor Kade. I didn’t necessarily set out to create rituals, but some activities we’ve done have stuck.

Kade died on June 29th, 2012. When the 29th of the next month approached, I didn’t know how I would get through that day. I decided to invite his friends over. I did the same the next month, and months after that. It was comforting to be surrounded by his young friends, and help each other get through.

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11/29/12

When the first year anniversary of his death approached, I knew it was right for me at that time to be with family and friends. Our whitewater rafting day down Brown’s Canyon, with Kade’s rafting company, his fellow guides, and his friends from Denver, was exactly the right thing for me. And it has been, for three more years. I can’t imagine that it won’t ever be right, but am open to if and when I feel that I want to do something different.

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6/29/14

I like to give gifts for those who come rafting. The first year I had purple silicone wristbands made that said, “Kade * loved * missed.” The next year I had bandannas made with his signature and image. Then we had t-shirts made, and this past year, more wristband that read, “Journey never ends, river bends.”

For Kade’s birthday each year we’ve had a pizza party. After pizza we’ve released sky lanterns. We couldn’t the last two times, because two years ago it was too windy and last year we had it during the daytime.

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1/24/14, Kade’s 21st birthday

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1/24/14, Kade’s 21st birthday

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1/24/14, Kade’s 21st birthday

I’ve arranged volunteering around his birthdays. We’ve done the library and animal shelter. I feel a drive to put some of the good into the world that Kade would have.

When we go to MI to visit family, we write messages on and release sky lanterns for Kade and my Grandpa Albert.

When I go on a hike or to the beach I like to write Kade’s name in sticks and rocks, or in the sand.

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Rituals can be so healing. I love that I don’t have to decide what to do on big days like the anniversary or his birthday. For now, what we’re doing is working.

I hope that we find more healing rituals that speak to us in the years to come.

capture your grief, day 18: healing therapies

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I guess it was a good thing that my mom called a local grief center for recommendations for a grief counselor for me. How in the heck would we have known to ask for someone who was trained in grief and trauma? Or who was a Fellow in Thanatology (the study of death, dying, and bereavement)? Or that there are bad ones out there? I am lucky that who I ended up going with happened to be a grief guru of sorts.

I’ve had a few opportunities to engage in art therapy. One activity at a grief retreat in Boulder was spent in “sacred silence” adorning a box with the choices of more craft supplies than you could imagine. I created this little soft, cushy, flannel box. It was surprisingly emotional. And I’m sure, utilized different parts of my brain as I picked out the perfect stones, colors, textures, and shapes. There is something about creating with your hands.

It gives your feelings something to do.

At a four-day retreat in Sedona we practiced guided meditation. There are so many benefits of mindful meditation that I want to incorporate it more into my life.

Yoga has been the perfect way to get back into exercising. Again, something I want to make more time for.

I think any expression is positive, like Capture Your Grief. Writing has been a major healing therapy for me.

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A Kade vision board I did early on. Love vision boarding.

capture your grief, day 14: beliefs and spirituality

/ Kade's mom / 1 Comment

An excerpt from my Spirituality and Counseling class benchmark paper:

The most dramatic shift I have experienced in my spirituality was after the death of my first born, Kade, four years ago. He was 19 and I was nearly 40. Like Moore’s (2011) “Jonah and the whale” analogy, my spiritual dark night was colossal in size, much bigger than I was. It affected every fiber of my being, every experience I had, and every thought in my head.

Explosion

My spiritual dark night was an explosion of planetary proportions. The fragments and pieces have yet to settle. Some have disintegrated completely. Some were charred to ugliness beyond recognition. Some have been blown to such heights that it is indeterminable if they will ever land. If I trust, as the ash rains down and coats me grey, that a transformation is taking place, I can bear the fallout easier.

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Tenderfoot Trail, Dillon, CO, 10/14/16

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The best heart rock I’ve found yet

capture your grief, day 13: dear world

/ Kade's mom / 1 Comment

We are spending a couple days in the mountains on a mini-vacation. Aaahhh, day 1 has been so nice and relaxing. But at dinner, in the restaurant that we had all to ourselves because it’s the off-season, I realized something. The happier I am and the more joy in my heart—like on a mini-vacation in the mountains—the more I miss Kade.

I asked my math-inclined hubby, “What kind of equation is that?” He said it was a proportional equation.

y = kx where k is the constant.

Yes, k is the constant.

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An empty chair

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An evening walk

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Sunset walk

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Peek-a-boo moon

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capture your grief, day 9: surrender & embrace

/ Kade's mom / 2 Comments

Early on I learned the phrase, Lean in to your grief. I have a grief counselor who has imparted that the crazy feelings I come in with are OK and normal. I’ve gone to an incredible bereaved parent retreat with a focus on mindfulness and being with your grief.

Does it suck to surrender to the sadness? Is it hard to embrace the emotions? Of course. Is it easier to avoid, and not go there? Yes, and I often do. Well, when I get through the things I need to get through in a day, like being around other people, going to my part-time job, or going to class, I am likely actively avoiding going there. Sometimes I’ve put off journaling for months. It’s been so hard to physically open it up, get my Kleenex, and know the pain that will ensue. But it’s cleansing. It’s…surrendering.

This may sound strange, but at four years out, I schedule time for going there. When I go to Buena Vista for the anniversary, I carve out alone time to journal by his river. When we go on vacation (it’s especially hard because I wish he was with us), I set aside time to journal. When it’s been too long, I crave things like being with my grief friends, going to Kade’s stone, going to a grief retreat, and journaling.

I suppose I crave those things, as a mom craves being near her child.

This topic, Surrender & Embrace, reminds me of other powerful sentiments: You can’t get around it, you have to go through it and If you don’t deal with it, it deals with you.

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October 9, 2016, the Front Range at sunset

capture your grief, day 8: beautiful mysteries

/ Kade's mom / Leave a comment

In my counseling program we are taught to be OK with ambiguity, that it will be a part of our jobs. We won’t always know the whole backstory. We won’t always know the whys. We won’t always know how it turned out. In class often the answer to a question is, “It depends.” Often there are no black and white answers, even in our ethics class, where I thought for sure there would be black and white answers.

What would Kade be like today? He would be 23, to turn 24 in January (I froze a bit, thinking of what will transpire in the next 3 months: four major holidays and his birthday. Again, even though I don’t want them to be, those times of the year are so impacting. I want to throw up when I see decorations in a store. It’s crazy, but it’s true; for now, anyway.)

At 23-going-on-24, Kade’s prefrontal cortex will not have even completed its growth yet. That is the center for executive function: judgment, inhibitory control, and planning, among others. It will have matured at around age 26. But today, he will have been closer, closer to the days where impulsivity, thrill-seeking, and questionable judgment do not physiologically reign.

He was getting there. Moving away from the city to the mountains to be a whitewater rafting guide, he was getting there. Getting a second job at the behest of his parents, a night job that made him so tired, he was getting there. I learned he talked about going to CSU in the fall with one of his rafting guide friends who went there, to pursue zoology. He was getting there. If only he got there.

Today, in an alternate universe on Saturday, October 8th, 2016, Kade would be a little broader, a little heavier, and in this world of beard popularity, a little hairier. He would whitewater-raft guide in Buena Vista by summer, and perhaps student at community college, Colorado Mountain College, or Colorado State University by fall, winter, and spring.

I wish he would, but I don’t think he would come back home to live in the non-rafting months. He would live with roommates. I would visit him and bring him a coffee, and care packages. He would visit us, and be amused with Asher’s growing so fast. He would try to teach Asher bad words and I would try to keep him from doing it. Asher would adore his great big brother. Instead of Asher bringing Kade’s skateboard up to his room to keep, Kade would teach him to balance on it outside. Instead of Asher asking to strum unguided on guitars on their stands, Kade would teach him a few proper riffs on his bed. Our family pictures would have Kade’s whole, grown, handsome, real self in them instead of a blown-up picture of part of him that we hold.

Family portraits…how adorable would they be with Little Asher and Big Kade? Is it too much to ask that both of my children be in a fucking family portrait? Can you see why anger is a part of grief? Is that too much for a mother to ask? Who thought this was alright, anyway? Who’s in charge here and thought that anything close to this would be alright?

OK, you were just witness to what a griefburst looks like, digitally.

Bitter tears wiped. Worked on a different project for a while. Back to Beautiful Mysteries.

Our relationship wasn’t perfect but it was improving. Kade was growing, as was I. We had lots of family counseling, lots of techniques learned, and I am sure we would continue to learn and grow separately, as well as together. Maybe we would have coffee dates. Maybe he would share more than he did before. Maybe, at 23-going-on-24, things would be distant, shaky, rough, and precarious. Maybe after 26 would our adult relationship start to flourish. Oh God, if we had gotten to 26.

Looking at his friends and their capacity to be loving, deeply pondering, and supporting human beings, I have high hopes for Alternate Universe October 8th, 2016. At 12:54 p.m., instead of writing on a grief blog, I would be heading to the grocery store to get some things to barbeque, and extras to throw in a box for him to take with. Because my son is coming over for dinner.

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capture your grief, day 7: myths

/ Kade's mom / Leave a comment

The myth that comes to mind is the five stages of grief. Though I see this knowledge becoming more known and disseminated in grief circles, it does not seem to be widely known in popular culture:

Elizabeth Kubler-Ross formulated her five stages of grief for the dying, not for the grieving. Denial, anger, bargaining, depression, and acceptance were stages of a theory, that people who were terminally ill may experience. It’s not so much a myth, as a misapplication.

There. Got that out of the way.

I suppose another myth is that profound grief is finite. Before Kade died I might have thought that losing a child would be a horribly rough road, but that after a period of hell (like a year), one would “get over it” and life would go back to how it was. What I’ve learned is that grief doesn’t end. I have friends 5, 10, 20 years out. They are not negative people, nor are they “stuck.” But they still miss their kids. They still get angry. They still require support sometimes. They still cry. Not in the same manner as the terrible early months, but they are forever changed.

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capture your grief – day 6: empathy

/ Kade's mom / Leave a comment

Even though I lost a child, I find myself still wondering what to do, and what to say to others going through hard times. I know I’ve been guilty of the “at leasts.” I know I’ve tried to fill space by trying to intellectualize, or make it better for someone. I need very frequent reminders like CarlyMarie’s below. What she has to say on empathy and holding space for a person is worth repeating.

Caring, empathetic people showed up for me right away…and continue to in surprising ways. After Kade died, my mom flew out the next day and stayed with me for a month. Aunts, uncles, and cousins flew to CO right away and helped while they were here. Friends flew out. My best friends came over and made untold behind the scenes arrangements. Tons of coworkers and friends came to the funeral. Lots of people reached out by e-mail or Facebook.

Some people are really good at empathy, and I look up to their example:

  • The old high school friend, who I hadn’t seen in 10 or 20 years, who came over to help with thank you cards.
  • My best friend who commiserates with me on how bad this sucks, unpolished and un-shined-up, not trying to shed a positive light. Oh yeah, she drove through a scary mountain blizzard with me for something Kade-related.
  • My friend who stole away from her large family to vacation with me over a holiday weekend. Shortly after Kade’s death we reminisced, questioned, conversed, picked out boys that looked like him in the crowd, chose girlfriends for him from the crowd, and bought keepsakes we wished we could have given to him.
  • My mom who keeps Kade’s memory alive with me.
  • The preschool mom friend who wanted to hear more about Asher’s great big brother when we went running together.
  • The kindergarten moms who saw my face at a classmate of Asher’s birthday party and knew something was wrong. It was the day before Kade’s birthday, and I had just come from volunteering for Kade. They wanted to see pictures from volunteering, and pictures of Kade.
  • Kade’s and my friends showing up to my sometimes frequent, sometimes harebrained gatherings for Kade.
  • The classmate in my graduate program who greeted me in class with a silent hug. She had read a Facebook post I made shortly before on how I couldn’t stop the tears in a restaurant as I read for class.

And then there are thoughtful acts that might not exactly fit into CarlyMarie’s description of empathy:

  • The mother and son ornament and book left on my front porch on a significant date.
  • A peacock keychain received in the mail (read this blog post to learn the peacock reference).
  • Pictures of baby, toddler, and preschooler Kade texted from an old friend when she randomly comes across them. She also texts me grief books she’s read, for me to read or to stay away from.
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Of course my list is not comprehensive and there are too many examples of thoughtfulness and empathy for me to mention. I hope to learn from and emulate the empathy I’ve witnessed, and I hope to remember this, in my life:

From CarlyMarie:

Capture Your Grief Day 6: EMPATHY

Empathy is about holding space for a person who is hurting. It is about allowing them to fall apart in your presence without judging them. It is about just simply showing up and being there without trying to fix them or show them a silver lining. When a baby or child has died, there is no “At least”. There is no “God needed another angel”. There is no “You should be thankful.” But! There is “I am here for you”. There is “Cry as much as you need to”. There is “Take as long as you like”.

Loved ones often say the wrong things because they are desperately attempting to make you feel better. They hate seeing you so hurt. Their intentions are usually always from the heart. They feel they have to try and fix things. Only there is no fixing any of this. It is what it is and nothing can make any of this right. Other times people say the wrong things because they just have no idea what to say.

Some people find showing empathy difficult because they hate awkward silences. But here is the thing… You can get over your fear of awkwardness by wrapping your arms around your friend! Sit and be with them in silence, even if it is difficult. If you can sit with your friend while they cry their heart out you are a true gift to them. Allowing your friend to release their emotions in your presence is an honour. Embrace that moment. Be proud of yourself for stepping out of your comfort zone. And if you don’t know what to say – tell your friend that. Remind them that you are there to listen.
Being empathetic in my opinion is much easier than trying to fix the impossible. It all comes down to acceptance. Accepting that sometimes in life, really horrible things happen and often to really good people and no silver lining will help right now.
Sending out all my love to anyone who has been on the receiving end of a hurtful comment while grieving, to anyone who struggles with showing empathy (breathe, you can do this!) and to everyone who is really good at it 🙂